Autism Reality

The Autism Acceptance Project – Rejecting Reality

The Autism Acceptance Project is one of the more recent rhetorical adventures of the anti-cure, autism is wonderful, movement also known as neurodiversity. If I sound cynical it is because I am. With a son with classic Autism Disorder who is profoundly autistic I, unlike the TAAP people, can not afford the luxury of wishful thinking. I am not seeking help for my son’s many positive attributes. I am seeking help for his negative attributes, the very serious, even life threatening deficits, which impair his quality of life, and will lead to a life of being cared for by others, just as they do for many other lower functioning, inarticulate autistic persons who are not represented in the Neurodiversity discussion groups. The TAAP folks object to candid description of unpleasant truths.

They react hysterically when parents seeking help for their own autistic children speak the truth. Witness the verbal abuse heaped by them on the parents of the Autism Every Day video. I will not stop speaking the truth while the TAAP and neurodiversity crowd write pseudo-scientific critiques dismissing evidence based standards of treatment for autism and condemning truthful portraits of classic lower functioning Autism Disorder.

If the neurodiversity crowd wants to paint a more positive picture for art galleries and society teas fine. Let them petition the American Psychiatric Association to change the names of higher functioning autism disorders to some other labels so that they do not have to be associated with the lower functioning classic Autism Disorder people like my son. That should ease their acceptance goals considerably. They can feel good about themselves and their friends in the neurodiversity movement. Those of us fighting for real help for our autistic children can do so without the annoying sounds of Autism’s sirens singing in the background.

March 25, 2007 Posted by | autism disorder, autism reality, low functioning autism, neurodiversity, TAAP | 6 Comments

Politics Blocs Help for Autism – Quebec



The motion by Charlottetown Liberal MP Shawn Murphy which would have amended the Canada Health Act to ensure funding for ABA treatment for autism was defeated by an alliance between the Harper Conservatives and the Bloc Quebecois. Mr. Harper and his Autism Front Man, Edmonton area MP Mike Lake, a father of an autistic child, argued that such an amendment would have constituted an intrusion into provincial jurisdiction. The Bloc in order to justify its existence in a federal parliament must be seen as fighting federalist intrusions into any aspect of Quebec life. But what did it cost Quebec children with autism for Quebec’s purported separatists to grandstand and obstruct in the name of political ideology? Are Quebec children with autism different than children with autism outside Quebec? Is the Quebec government so wealthy that all autistic children are fully funded for effective ABA treatment?

The answer to both of these questions is “No” as the following excerpt from the CASLPA Canadian Association of Speech Language Pathologists and Audiologists presentation to the Canadian Senate makes clear:

Quebec

The standard of care for ASD in Quebec is Applied Behaviour Analysis (ABA), but given that ABA is an intensive, one-on-one program involving roughly 20 hours of therapy a week, the province does not have sufficient resources to provide every autistic child with ABA when the treatment is needed.

In Quebec, the waiting list for ABA can be anywhere from six months to a year after diagnosis. This is challenging for hospital staff as speech-language pathologists are there to assist with the diagnosis but there is not any on-going mandate to provide treatment. Frustration with ABA waiting lists has caused speech-language pathologists and psychiatrists to seek out more cost-effective therapeutic alternatives, such as intervention programs that are designed to help parents support language development in their autistic children.

http://www.caslpa.ca/PDF/SenateCommittee_bried_nov2006.pdf

Unfortunately for Quebec’s autistic children politics Bloc’d a serious effort to provide funding for the effective ABA treatment their parents seek on their behalf.

March 25, 2007 Posted by | aba, applied behavioral analysis, autism disorder, bloc quebecois, Canada Health Act, Gilles Duceppe, Mike Lake, Stephen Harper | Leave a comment