Autism Reality

Autism Presents Daily Challenges for Parents

The following excerpt from the Lake Sun article on the daily challenges faced by parents in living with their child’s autism illustrates that one of the old problems – parents concerns being brushed aside by doctors and pediatricians – is still occurring and still costing the children involved valuable time when they could be receiving active intervention. For intervention the earlier the better. But this valuable time is squandered when lazy or out of date physicians tell parents they are over reacting – or the old classic – he’s a boy he’ll grow out of it.

Living with autism presents daily challenges for parents

By Deanna Wheeler/Lake Sun

Published: Monday, April 30, 2007 12:16 AM CDT

TUSCUMBIA – Amanda Phillips knew something was wrong with her son, Owen, when he was 16 months old. Looking back, she describes the symptoms generally. First it was the tip-toe walking, then he flapped his hands and arms a lot, and finally, it was the loss of the few words he did know.

‘Looking back now, I can’t even pinpoint when he stopped talking. I just remember thinking, ‘He’s not saying any new words. He’s not even really saying the old words,” she said. ‘I brought up autism to his pediatrician because every time I typed in those symptoms in a search engine on the Internet, everything that came up was leading to autism sites.’

The pediatrician brushed off Phillips’ concerns as an over-reactive parent, but Owen’s symptoms did not improve. By age 2, Owen still was not talking and at 27 months, Amanda got the diagnosis – autism.

‘You know, it really wasn’t a surprise,’ Amanda said. ‘You still have that hope that the doctor will tell you he’s fine, but I knew. I knew all along.’ … Owen is non-verbal. The few words he once knew, he has never spoken again. About 25-30 percent of children with autism say some words at 12-18 months, but lose them, according to the Department of Health and Human Services Centers for Disease Control and Prevention’s Web site.

Another 40 percent of children with autism do not talk at all. Others with autism have relatively good verbal skills. Some may be able to speak, but not form words into meaningful sentences; others may repeat the same phrase over and over again.

Another common problem in autism is social skills. ……..

http://www.lakesunleader.com/articles/2007/04/30/news/01.txt

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April 30, 2007 Posted by | autism awareness, autism diagnosis, autism disorder, autism treatment, parents, pediatricians | 2 Comments

Autism & HBOT – Hyperbaric Oxygen Is NOT An Evidence Based Treatment for Autism


I have blogged previously on Hpyerbaric Oxygent Treatment as a treatment for autism. At this point in time HBOT is NOT considered to be an evidence based treatment for autism. There is a study going on which MAY or MAY NOT change that fact but for the present, as the authorities reviewed in the Chicago Tribune indicate, there is NO evidence to support the effectiveness of HBOT in treating autism.

http://tinyurl.com/2apv44

Parents turn to long-shot therapy for autism

By Kirsten Scharnberg
Tribune national correspondent
Published April 23, 2007, 7:48 PM CDT

HONOLULU — Kalma Wong has tried almost everything for her two autistic children: special diets, intense behavioral therapies, flying in experts from the U.S. mainland at exorbitant costs.

Some efforts have yielded modest success. Others have done next to nothing.

But like many other parents of the more than 500,000 children that the Centers for Disease Control estimates to be autistic in the U.S., Wong has vowed to keep trying until she pinpoints the treatment that most helps her kids.

Her latest attempt is one of the most long-shot therapies yet, a protocol some doctors praise but that others declare to be a waste of time that gives desperate parents false hope and exploits them financially.

It is called hyperbaric oxygen therapy, a treatment in which pure oxygen is delivered to patients confined to pressurized chambers for an hour a day for several weeks. The theory is that the extreme doses of oxygen essentially the same kind of treatment that has been used for decades to cure divers with decompression illness will spur dormant or damaged neurons in the brain to become reinvigorated or even transformed.

In the case of children with autism, considered the fastest-growing developmental disability in the U.S. today, the new treatment is claimed to have produced some stunning results: transforming non-verbal children into fluent speakers; helping children hypersensitive to outside stimuli become calm enough to attend public schools; changing kids once adverse to any personal interaction or touching into affectionate toddlers.

….

Markley said she has treated more than 30 autistic children with HBOT and “every single child of those 33 had consistent quality-of-life improvements.” The improvements, she said, were more pronounced in kids most afflicted by the characteristics of autism: the repetitive behaviors and the impairments in sensory perception, social interaction and communication.

Critics argue that no studies have been done that use scientific models such a double-blind testing. They caution that the treatment has been tried only on a handful of children affected with autism nationwide, not nearly enough to draw valid conclusions.

“They are making extraordinary claims without extraordinary evidence,” Iyama said.

Evidence is exactly what supporters of HBOT are hoping to get in the coming months. Beginning in May, the Honolulu clinic, along with some 20 hyperbaric oxygen clinics across the U.S., will launch a formal study into how autistic children respond to the therapy. A total of about 400 children will be included, and the results are to be evaluated by the National Institutes for Health.

Other studies are under way that HBOT proponents are closely watching. One of the biggest is a federally funded study on the effects of HBOT on children with cerebral palsy that is under way at Wright-Patterson Air Force Base in Dayton, Ohio.

One group watching the outcomes of these studies is the Undersea and Hyperbaric Medical Society, a non-profit group of doctors that investigates scientific claims linked to HBOT. Thus far the group has been skeptical of using HBOT to help neurological conditions such as autism or cerebral palsy.

“If we just had the evidence we’d be happy to support it. But it just isn’t there,” Dr. Donald Chandler, executive director of the UHMS, has said in statements regarding the therapy….

April 24, 2007 Posted by | autism treatment, Chicago Tribune, evidence based treatment, HBOT, Hyperbarid Oxygen Treatment, parents | 3 Comments