Autism Reality

Vancouver Province Calls for National Autism Strategy

The Vancouver Province has issued a call for a national autism strategy, including an amendment to the Canada Health Act to include autism as an insured health service. One omission from the Province’s statement is the need to address the plight of autistic adults particularly those living a custodial existence in mental health care and residential facilities. Still the Province’s call for a national autism strategy provides much needed support in the struggle to improve the lives of Canada’s autistic population and is appreciated by this father of a severely autistic boy.

A national strategy is urgently needed for autism victims

The Province

Published: Sunday, April 15, 2007

Advocates for the estimated 200,000 Canadians suffering from the neurological disorder known as autism suffered another setback last week in their campaign for greater government support.

A court battle launched by 28 Ontario families to try to get their provincial government to fund treatment for their autistic children ground to a halt when the Supreme Court of Canada declined to hear arguments in the case.

….

The help they get depends on where they live. Alberta, for example, pays up to $60,000 a year to age 18 for treatment. But B.C. pays $20,000 a year to age six and only $6,000 a year thereafter.

B.C. Liberal MP Blair Wilson, who campaigns for autism victims, says such inequity is unacceptable. We agree, and endorse a Senate committee’s call last month for a federal-provincial conference to develop a national strategy for autism, which now affects one in 200 children.

The plan should include an awareness campaign, plus more money for research and tax breaks for victims’ families. One sweeping solution would be to amend the Canada Health Act to include autism as an insured health service.

We are well aware that the additional burden on health costs would be considerable and would have to be weighed against competing priorities.

But, as a caring nation, we have a moral obligation to do what is right.

http://tinyurl.com/32naeo

April 15, 2007 Posted by | autism disorder, autism treatment, Canada Health Act, national autism strategy, Supreme Court of Canada, Vancouver Province | Leave a comment

To Deskin Wynberg Autism Case Families – Thank You


[Above top Supreme Court of Canada building, bottom – Canadian Parliament building]

Yesterday the Supreme Court of Canada, in a decision which probably did not surprise too many people, dismissed without reasons the application for leave to appeal the decision of the Ontario Court of Appeal in the Deskin-Wynberg case. The Court of Appeal had overturned a trial court decision which ruled that the Ontario Government was in contravention of the Charter of Rights by its refusal to fund Intensive Behavioral Intervention treatment for the families’ autistic children. The Supreme court of Canada has shown increasing deference to government decision making during the tenure of the Rt. Hon. Chief Justice Beverley McLachlin, P.C., as Chief Justice of the Court. The Newfoundland pay equity case was the real indicator of the ascendancy of deference to government as the principal concern in the court’s equality rights decisions. In that case Newfoundland (Treasury Board) v. N.A.P.E., 2004 SCC 66, [2004] 3 S.C.R. 381the Supreme Court found that postponement of introduction of pay equity schedules constituted serious discrimination but was justified by the challenges facing government decision makers to maintain government credit ratings and assign scarce financial resources.

The Auton case, Auton (Guardian ad litem of) v. British Columbia (Attorney General), 2004 SCC 78, [2004] 3 S.C.R. 657in which the Supreme Court of Canada reversed the unanimous decision of the British Columbia Court of Appeal, and a trial court decision ruling that exclusion of autism treatment from provincial medical care funding constituted discrimination contrary to the Charter left little room for doubt that deference to government now trumps the rights interests involved in Charter of Rights cases. In that case the Court concluded that the Canada Health Act itself provided limited guarantees of health coverage to Canadians and failure to provide coverage for treatment of some conditions could not therefor constitute discrimination.

In Canada it is clear that the courts are becoming an increasingly ineffective remedy for protection and advancement of the rights of children with autism. Any disability group which seeks to enforce what they consider to be their equality rights will have to think long and hard before commencing litigation to protect those rights under the Canadian Charter of Rights and Freedoms.

The litigation in the Deskin-Wynberg case helped keep autism issues on the forefront of political consciousness across Canada. The families’ tremendous sacrifices, and that of their legal counsel, were undoubtedly very substantial. What is crystal clear, after the decisions in Auton and Deskin-Wynberg is that families seeking public policy assistance for their autistic children will have to take their concerns to the political arena.

The realities of politics often come down to numbers. Although autism is increasingly recognized as widespread with 1 in 150 persons now estimated to have some type of autism spectrum disorder those numbers will have to be translated into some degree of political influence. 1 in 150 does not sound like an overly strong hand to play but it is actually somewhat larger than that. Most people on the autism spectrum will have parents, siblings, relatives, family friends, personal friends who might vote based on the interests of the autistic loved one in their life. That expands the potential “autism vote” substantially and might be used to some effect in close political and federal ridings to try and pressure politicians to do what their consciences – and the courts – have not required them to do – treat, educate and provide decent residential care for autistic persons in need.

The future will tell whether autism numbers can be translated into political influence and gains for autistic persons and their families. For the present I would like to again personally thank the families, and the legal counsel, in the Deskin-Wynberg and Auton cases for the tremendous contributions they have made to the cause of autism in Canada.

April 13, 2007 Posted by | autism disorder, autism treatment, Desking, Supreme Court of Canada, Wynberg | 1 Comment