Autism Reality

AutismRealityNB Stanley Cup Prediction – Ottawa Wins Stanley Cup 4 Games to 2




You heard it here folks. Ottawa Senators will win the Stanley Cup 4 games to 2 over the Anaheim Ducks. Sorry to break the news to Anaheim Ducks fans.

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May 28, 2007 Posted by | anaheim ducks, autism reality, ottawa senators, prediction, stanley cup | 3 Comments

Autism Advocacy – FEAT BC Makes A Big Splash on the East Coast


The people from FEAT BC put a lot on the line with this tour. They invested money, sweat, credibility and time, including precious time away from their families, to make this trip across Canada and out to the East Coast to fuel a national effort to get autism covered by medicare. They did not come in to preach to the locals though. They came to talk and encourage all of us to get together and GET POLITICAL. If you are a Canadian parent seeking medical treatment for your autistic loved one NOW is the time to get involved. You can contact Jean Lewis via email at jean.lewis@telus.net. Or you can reach me at dohertylaw@rogers.com. NOW is the time not tomorrow.

If you are a member of a local or provincial autism group which receives government funding to operate they may discourage you from getting involved. Don’t let them discourage you. Act for your child and get involved. Feel free to contact Jean Lewis or me. Other contacts will also be provided soon. Contact your Member of Parliament and ask him or her to support autism coverage in Medicare. Just call them, write them or email them and let them know that is what you want. There is no need to debate them unless you want to do so but they know the need and they know effective treatment is available. Make your MP or anyone seeking to become your MP know that your vote depends on them making a commitment to include autism treatment in medicare coverage. NOW is the time to get involved, and GET POLITICAL.



Group pushes for autism funding
B.C. organization wants Ottawa to set standard for treatment

By MELANIE PATTEN The Canadian Press

A British Columbia-based group pushing to have costly treatments for autistic children covered under medicare has brought its fight to the East Coast.

Representatives from Families for Early Autism Treatment of B.C. met with dozens of parents and their autistic children in Dartmouth as part of a cross-country tour.

The non-profit organization has been calling on Ottawa to work with provincial and territorial governments to set a national standard for autism treatment.

The group also wants intensive therapy, known as applied behaviour analysis, covered for all Canadian children regardless of where they live or their family’s income.

“This is a health-care issue; this is science-based, effective treatment,” said Jean Lewis, a founding director of the group.

“It needs to be funded through health care so that it doesn’t matter if you live in British Columbia or Newfoundland, your health care is looked after in the same way as everyone else’s.”

The treatment, which can include one-on-one time with a trained professional, can cost up to $60,000 a year.

Without a national standard, coverage for autism treatment differs across the country. In Prince Edward Island, for example, coverage is assessed by income.

“That’s not the way they deal with a cancer patient, that’s not the way they deal with a cardiac problem,” said Shawn Murphy, the Liberal MP for Charlottetown. “And that’s not the way they should deal with this particular issue.”

Murphy said Ottawa has agreed to meet with the provincial and territorial governments by the end of the year to create a strategy.

Both levels of government will have to pitch in funding for treatment, support and diagnosis, said Murphy, who was recognized by the association for his public support for a national autism framework.

New Brunswick Liberal MP Andy Scott, Nova Scotia New Democrat MP Peter Stoffer, and Liberal Senator Jim Munson, were also recognized.

Jeff Reeves of Charlottetown, whose five-year-old son Owen has autism, attended the event to push Ottawa to provide more funding for autistic children.

Reeves said his son was diagnosed with autism at the age of two. He said Owen finally began treatment after sitting on a waiting list for nearly 18 months.

“Owen is very intelligent, but it’s his social interaction . . . eye contact, how to play with kids correctly,” said Reeves, 33, who is married and works in the IT industry.

“He’s made strides that we can’t believe . . . but if he would have gotten (treatment) at three, he could have been much further ahead.”

Owen’s treatment costs more than $10,000 a year, and Reeves said the province covers about 60 per cent. The family also pays for supplemental treatment out-of-pocket.

“The federal government has to do something about the funding for (the treatment),” said Reeves.

“The earlier they intervene, the better off these kids will be.

“If they leave them until they’re 18, 20 years old, they’re going to become drains on the system.”

Calgary Sun, May 27, 2007

B.C. autism group tours the nation

UPDATED: 2007-05-27 01:14:36 MST

Push for early treatment takes group to East Coast

By CP

DARTMOUTH, N.S. — A B.C.-based group pushing to have costly treatments for autistic children covered under medicare took its fight to the East Coast yesterday.

Representatives from Families for Early Autism Treatment of B.C. met with dozens of parents and their autistic children in Dartmouth, N.S., as part of a cross-country tour.

The non-profit organization has been calling on Ottawa to work with provincial and territorial governments to set a national standard for autism treatment.

The group also wants intensive therapy, known as applied behaviour analysis, covered for all Canadian children regardless of where they live or their family’s income.

“This is a health-care issue; this is science-based, effective treatment,” said Jean Lewis, a founding director of the group.

“It needs to be funded through health care so that it doesn’t matter if you live in British Columbia or Newfoundland, your health care is looked after in the same way as everyone else’s.”

The treatment, which can include one-on-one time with a trained professional, can cost up to $60,000 a year.

Without a national standard, coverage for autism treatment differs across the country.

In Prince Edward Island, for example, coverage is assessed by income.

“That’s not the way they deal with a cancer patient, that’s not the way they deal with a cardiac problem,” said Shawn Murphy, the Liberal MP for Charlottetown. “And that’s not the way they should deal with this issue.”

Murphy said Ottawa has agreed to meet with the provincial and territorial governments by the end of the year to create a strategy.

http://calsun.canoe.ca/News/National/2007/05/27/4211713-sun.html

May 27, 2007 Posted by | autism advocacy, autism disorder, Canada Health Act, FEAT BC, Jean Lewis | Leave a comment

National Autism Political Strategy, Dartmouth, May 26, 2007











Yesterday began early up at 5, off to gas up and then on the road to the Dartmouth Holiday Inn to meet the folks from FEAT-BC as part of their national autism strategy tour. Above, the charming ladies at the registration desk got everybody signed in and welcomed. My sister, Belinda Doherty, and Chris (aka Jim aka Bruce ) Armstrong arrive from the Valley. (Annapolis Valley), Shawn Murphy, Senator Jim Munson and Andy Scott exchange pleasantries, Andy and Jean Lewis from FEAT-BC, Denise Cameron Scott TRIES to grab a relaxing moment after a long journey but is bothered by a pesky blogger, Brian Rimpilaenan travelled from Fredericton for the event, and last but far from least, Peter Stoffer, who with Andy Scott in presenting a national autism strategy motion in the House of Commons cleans up on the door prize a beautiful piece of art by a BC First Nations artist.

It was a great day and the message we all shared was crystal clear. It is time for the autism community in Canada to GET POLITICAL. The courts have, as was noted in some of the speeches, washed their hands of Canada’s vulnerable autistic citizens. For autistic children in Canada section 15 has been turned into an empty and hollow promise by the Supreme Court of Canada decisions in Auton and Deskin-Wyneberg. Political solutions are all that is left and political solutions, as past history in BC and Ontario has shown, will not come easy, with politicians, once elected, backtracking on and backing out of their promises. For some unknown reason judges and political leaders both feel free to disregard the compelling realities, needs and challenges of Canada’s autistic children and adults.

But politics remains the only solution and there has been progress, real progress, on the national political scene. The Scott-Stoffer motion put autism in the national political consciousness. The valian effort by Shawn Murphy was defeated on the votes but it continued that growth of political consciousness, and continued the momentum towards a true national political solution to Canada’s autism crisis.

The FEAT people intend to focus on ridings where the margin of victory in the last election was 2% or less and work on electing candidates with a commitment to autism. That looks like it will achieve some good results but it is not enough. Individual MP’s do not establish laws or otherwise govern in our party based parliamentary democracy. Parties, usually under tight Prime Ministerial direction, govern in Canada. That means the autism community must help elect parties that WILL introduce legislation to include ABA, and any other evidence based treatments for autism, in Canada’s national medicare coverage scheme. As Murphy, Munson, Stoffer and Scott all noted, that can be done in Canada’s cooperative form of federalism regardess of who has primary constitutional jurisdiction over Health care.

But our political history is clear on this subject. Medicare was an idea borne of the NDP (CCF) and was put into effect by the Liberals. More recently the Bloc Quebecois and Stephen Harper’s Neo-Con Conservatives all voted unanimously against including autism treatment in medicare. Any realistic national political strategy must acknowledge these realities. And we must be candid with the autism community and with Canadians. As a dad with an autistic son my party is the Autism Party which exists only in my mind and my heart, but guides my political actions. And it tells me that the best interests of autistic Canadians will be served by electing Liberals and NDP members of parliament so that one or either or both in a minority government situation, can actually pass legislation to include autism treatment coverage in Medicare. Let’s GET POLITICAL, let’s elect a government which will include autism treatment in Medicare so that autistic Canadians wherever they live will receive effective government funded autism treatment.

Thanks to Jim Young of FEAT-NS whose province hosted this event and the folks from FEAT-BC who have done so much for the cause of autism in Canada. Special thanks too, to the politicians with consciences, Andy Scott, Peter Stoffer, Shawn Murphy and Jim Munson, all of whom have made serious efforts to advance the cause of autism nationally.

May 27, 2007 Posted by | Andy Scott, FEAT BC, Jean Lewis, Jim Munson, Jim Young, national autism strategy, Peter Stoffer, Shawn Murphy, Stephen Harper | 1 Comment

Autism challenging for all

Autism challenging for all

Parents happy with province’s support, but want more.

By Tony Kiritsis

Published Thursday May 24th, 2007

Standing tall atop the jungle gym almost eye level with his father Todd, Ryan Downey paces back and forth with a smile on his face that comes and goes. Perhaps he’s unaware of the barking dogs running in the unkempt field behind him, their owner calling out commands. Or perhaps he doesn’t care, more concerned about how he will get down.

Just by looking at Ryan as he cautiously approaches the slide, toward Todd’s coaxing voice, it’s as if there’s nothing wrong. But, behind his blue eyes there’s something different about him and unlike other four-year olds his age, he can’t talk. If he could, he would probably tell you exactly what’s wrong.

Instead, he will pace around the room, his hands sometimes flapping, offering the impression he’s trying to master a one-handed clap.

At other times he rocks back and forth, his teeth biting down, slowly tearing a hole into the top right-hand shoulder of his shirt. Or he screams and cries because he’s scared and frustrated and needs to be heard.

Somewhere, in another part of the city, another lost voice is that of 22-year-old Christopher Hammel.

This docile individual can look intimidating when standing, towering at over six-feet tall. His expressionless stare can be mistaken for a look of displeasure, until he approaches you, raises his powerful hands and pats you on the shoulder.

Seated across from Christopher is his voice; his mother Karen. Like Ryan, Christopher is non-verbal. His frustration and pleasure reveal themselves through grunts, noises and the use of body language.

Ryan Downey and Christopher Hammel are only two of the multitude of children and adults in Canada who suffer from one of the many forms of autism. Autistic children face daily struggles well into adulthood, while their families fight on their behalf to provide the best possible life for their autistic children.

In Canada, roughly 1/165 people aged 0-19 have an Autism Spectrum Disorder (ASD). Adequate funding for services and the need to properly educate these children early in life are only two of the challenges that parents and the systems in place face.

“We thought it was the end of the world,” says Todd, when he and Tamara discovered Ryan was autistic.

Parents of autistic children face daily struggles that often leave them worn out. Not only must they contend with the emotional trauma, but also the financial instability.

“When your child is autistic it’s a fight you’re in for life. Some people do give up and I don’t criticize them,” says Harold Doherty, a local lawyer and autism activist.

Doherty has been fighting for better services on the part of his family, and others in the community.

Karen Hammel says she understands the strain that’s placed on the family. When she had Christopher diagnosed at the IWK Hospital in Halifax in 1986, doctors there told her she should institutionalize her son. Since then, she’s placed his needs first.

“We don’t eat out, we don’t go to movies,” says Karen. “House repairs haven’t been taken care of. We just go without things that most people don’t go without.”

Like many parents of children with disorders Todd and Tamara were in denial about Ryan’s condition. They blamed themselves for something they thought they could have prevented, when in fact they were doing everything they knew.

“We were pissed at ourselves for not picking up on it,” says Todd. “It was as if we failed as parents.” Autism is a disorder with one face but wearing multiple masks to conceal its identity.

Considered a spectrum disorder, those diagnosed fall upon a scale and are assessed based on the severity of their symptoms.

Children born with an ASD tend to avoid social interaction with other people. They lack communication skills and engage in excessive repetitive stereotypical behaviours called stimming.

Since the diagnosis the Downey’s have found support in Fredericton’s autistic community through the Autism Society of New Brunswick and Autism Intervention Services, a local centre where Ryan receives therapy.

It’s here, amidst the maze of cubicles that reminds one of an office building, where behind the grey dividers you would expect to find a middle-aged man hunched over a computer busy typing, pictures of his wife and kids pinned to the board above his desk.

Yet there are no desks, nor are there any middle-aged men hard at work behind those dividers. But there are kids back there, kids like Ryan.

Child psychologist Paul McDonnell, who diagnosed Ryan, says that therapy is by no means a cure, because the word cure demotes an absolute result. Instead, McDonnell says people will say this child will become indistinguishable from other children.

When the centre’s current location opened in May of 2006, program director Danielle Pelletier says they only anticipated 30 children but now have over 50 children receiving treatment.

Since most children are diagnosed after the age of two, it allows them three to four years of provincially funded therapy. The key to helping children with an ASD is to intervene early.

The centre practices applied behavioural analysis therapy (ABA), a repetitive process by which tasks are broken down into smaller steps. As the child learns each step he can combine them into one complete task.

In New Brunswick, pre-school aged children receive 20 hours of government funded therapy each week through the Department of Family and Community Services. Other Canadian provinces like Alberta will fund autistic children until they reach 18.

“It pretty much seems that 20 hours a week is rock bottom,” Dr. McDonnell says. “Research pretty consistently shows that over 25 hours and especially over 30 hours, will give you much better results.” Sheila Bulmer, provincial program advisor with the Early Childhood and School Based Services Branch with Family and Community Services says, “We came up with 20 hours, and obviously that’s at the lower end, but the other monies and services that children can tap into is what we call integrated daycare.” Bulmer says parent involvement at home also contributes to the child’s therapy and learning.

Although parents will do all they can to provide extra therapy and learning for their children, the bottom line is they aren’t trained therapists.

“It turns out New Brunswick is a good place to be if your child has autism, especially the Fredericton area,” says Todd. “We’ve seen serious improvement and that makes us happy.” The therapy Ryan and other children his age receive may be adequate, but more could always be done.

“You do the intensive intervention up front because that’s where you’re guaranteed to get the most improvement and the most change,” Bulmer says.

The money the Downey’s receive goes directly to Autism Intervention Services to cover an array of costs including the therapy. Yet all this money is still not enough.

Hundreds of dollars are spent on new toys for new therapies and because Ryan requires around the clock supervision, Todd has become his primary caregiver giving up his career.

“We’ve already cashed in some retirement money to help him and we’ll probably have to cash more,” says Tamara.

Early intervention is meant to aid autistic children in order they be integrated into society with the hope that someday, they will be able to live semi-independent lives.

“I’m most worried about the school system,” Todd says. “I think he’s going to be ready for school, but is the school going to be ready for him?”

Harold Doherty believes the system isn’t prepared to handle these students and changes need to be made. “The system says teachers teach and that’s it.”

Each year approximately 40-50 new students with ASD will enter the English sector school system in New Brunswick. This number is high considering last year, roughly 24 students with an autism spectrum disorder graduated or phased out of the system at age 21.

With nine Anglophone and five Francophone districts, the English and French sectors combined have approximately 900 students with ASD from kindergarten to grade 12 province wide.

Stephanie Allen-Holt, a learning specialist with the Department of Education for students with autism spectrum disorder, says over the last two years her department has been trying to increase the capacity for specialists that can work specifically and directly with autistic children.

Allen-Holt says one of the recommendations from the Liberal platform was to train teacher assistants through the University of New Brunswick’s College of Extended Learning with autism support worker training. This called for 100 trained teacher assistants each year over four years.

“What’s the cost going to be when you have a child that’s not appropriately educated? You’re putting money into teaching them pre-school and when they go to school, if that support isn’t continued, there’s actually the chance some kids could digress,” Tamara says.

New Brunswick’s Minister of Education, Kelly Lamrock says his department will begin the training as soon as possible.

“If it’s at all possible to do in September, we will, trust me. That will be the first spending order I give for the new budget year,” says Lamrock.

As parents like the Downeys fight for their son’s well-being, the outcome is to provide a better quality of life for the future. For parents like Karen this is now the fight.

“The cost down the road is immense for the government if they want to look at cost and numbers and dollars. To take care of someone who can’t independently, or somewhat independently function and become a part of society, that cost is huge. Pay now, or pay a lot later,” Tamara says.

Karen has fought to give Christopher similar if not equal opportunities in life, but says while society is accepting and including, they aren’t integrating. She has taken it upon herself to integrate her son into society.

Two afternoons every week, Christopher walks through the glass paneled doors at the Greco on Dundonald Street in Fredericton, to the greetings of fellow employees. He comes to build boxes that will end up at doors of residents in the city.

As his strong hands gently assemble the malleable puzzle like cardboard cut-out pieces, the ability to hold down a job shows with enough help, there may be nothing he can’t achieve.

“For older individuals the need is proper residential care,” says Doherty. “Unless you can care for your child, you have to place them in a group home.”

Karen has no inclination of placing her son in a home any time soon if she can help it. Parents like the Downeys hope one day they will not have to make that choice.

“Someday it would be nice if adults with autism had some type of program that would be available to them and their families,” says Pelletier. While Family and Community Services’ long-term care plan provides Christopher with a care worker and a disability pension, it’s still not enough.

“I’m currently fighting to get clinical supervision covered,” Karen says. The cost for this service is approximately $10,000 a year.

As it stands, the Department of Family and Community Services and the Department of Health and Wellness won’t cover clinical supervision because it’s considered an indirect service.

Exhausting all her governmental avenues, if a resolution isn’t achieved, Karen feels she has no alternative but to file a human rights complaint, as she believes her son is being discriminated against.

The Downey’s have wrestled and settled with a lot in a short period of time, even though they’re in the early stages of the fight for Ryan’s future.

“We’ve come to terms that this is how it’s going to be,” Todd says. “I’ve come to terms that I’m probably not going to have a career. We’ve come to terms that we aren’t having another child.”

The intervention Ryan began months ago has yielded an improvement . He has begun to interact with other children at the centre and is able to be in public spaces like the mall with minimal incidents.

Karen knows she will always be fighting for Christopher. One day she won’t be able to take care of him anymore and wonders what will happen to him in the future.

“No matter what it is you’re looking for, you always just have to keep repeating and repeating it to the government. After a while…you feel so beaten down,” Karen says.

The future for children like Ryan appears optimistic. Programs and services to aid autistic children in their youth have improved, but have a long way to go.

The future for adults like Christopher would be bleak, if it weren’t for the determination of parents like Karen, who are currently laying the groundwork for the next generation.

http://www.canadaeast.com/ce2/hereroot/index.php?paper=here

May 25, 2007 Posted by | aba, adult care, autism, Autism Connections Fredericton, Autism Society New Brunswick, education, Paul McDonnell, UNB-CEL Autism Intervention Training Program | Leave a comment

Autism Youth and Adult Residential Care & Treatment Still Abysmal in New Brunswick



In October 2005 the Toronto Star reported on the case of a New Brunswick autistic youth who was being housed by the Province of New Brunswick on the gounds of a youth correctional facility. The youth had committed no crime. The state of New Brunswick’s youth and adult residential care and treatment facilities was so bad, virtually non-existent for those with more severe and challenging autism disorder, that the province felt it was the only place that could accommodate the youth while they waited for his admission to a facility in the United States. The Toronto Star article follows this comment. Unfortunately, as the letter from Stephen Robbins posted here a couple of days ago indicates things have not improved any since then. In New Brunswick we must still export our autistic youths and adults out of the country for decent residential care and treatment.

From a personal perspective this issue weighs heavily on my mind. My son Conor was 9 at the time of the first story. He is now 11 and nearing the age of the two youths in these stories. In the meantime youth and adult residential care and treatment in New Brunswick have not moved a single steop forward. The bureaucracy does what the bureaucracy always does. It delays, it denies that problems exist, it worries about the careers of its members and whether they might be embarassed but it takes no significant action on critical issues affecting some of New Brunswick’s vulnerable members.

Autistic boy kept in New Brunswick jail

No other place for him to stay 13-year-old must go to U.S. hospitalNo other place for him to stay

13-year-old must go to U.S. hospital

The Toronto Star, KELLY TOUGHILL, ATLANTIC CANADA BUREAU, Oct. 19, 2005

HALIFAX—A 13-year-old autistic boy now living in a New Brunswick jail compound will be sent out of Canada because there is no home, hospital or institution that can handle him in his own province.

Provincial officials confirmed yesterday the boy is living in a visitor’s apartment at the Miramichi Youth Centre and will be moved to a treatment centre in Maine by November.

They stressed he is not under lock and key, has no contact with other inmates and is living outside the high wire fence that surrounds the youth detention centre.

Nevertheless, the jailhouse placement and the transfer to Maine have outraged mental health advocates and opposition critics.

“They put this boy in a criminal facility because he is autistic,” said Harold Doherty, a board member of the Autism Society of New Brunswick.

“Now we are exporting our children because we can’t care for them. This is Canada, not a Third World country.

“We are supposed to have a decent standard of care for the sick and the vulnerable, but we don’t.”

Liberal MLA John Foran echoed his concern. “This boy has done nothing wrong, is not the subject of any court order, but is in a penal institution.”

Provincial officials yesterday insisted critics are misrepresenting the nature of the boy’s situation and that in fact the province has done everything it can to help him.

“This individual is not being held, and is not incarcerated,” said Lori-Jean Johnson, spokeswoman for the family and community services department.

“He has housekeeping, bath and a separate entrance. We are just utilizing existing resources.”

Privacy laws prevent officials from discussing anything that would reveal the boy’s identity, including details of his previous living situation and the whereabouts of his parents.

This much is known: He suffers from a severe form of autism and is a ward of the state, under the guardianship of the minister of family and community services. He was living in a group home until recently, but became so violent that he was judged a danger to himself and others. At a psychologist’s recommendation, he was moved to a three-bedroom apartment on the grounds of the Miramichi Youth Centre, a prison for about 50 young offenders. Two attendants from a private company watch the boy around the clock, at a cost to taxpayers of $700 a day.

Johnson said she does not know any details of his care.

Doherty said the jailhouse placement and move to Maine highlight the desperate need for better services for autistic children in New Brunswick and across Canada.

He said staff at most group homes in New Brunswick aren’t trained to deal with autism and don’t understand the disorder.

“If you don’t understand autism, things can become very bad very quickly,” said Doherty, who has a 9-year-old son with the disorder.

“We have been pushing for (better facilities) in New Brunswick for several years. This is not a crisis that has popped up in the last two days. Residential care is a critical element for these people and it is not being provided.”

Johnson said the provincial system of group homes and institutions that care for children and adults with psychiatric disorders and mental disabilities works for most people.

“We do have existing resources, but once in a while, there will be an exception. Here, we are looking at a very extreme case.”

The boy will be moved to an Augusta, Me., treatment centre at the end of the month, said Johnson.

The centre, run by a non-profit group called Spurwink, specializes in dealing with autistic adolescents.

A Spurwink representative did not return a phone call from the Toronto Star.

Provincial officials could not detail the cost to keep the child at Spurwink, nor did they have information about why he’s being sent to Maine, rather than a Canadian facility in another province. “

….

Keep autistic children in the province

Daily Gleaner (Fredericton NB)

Published Wednesday May 23rd, 2007
Appeared on page C7

This is a letter to Premier Shawn Graham.

I am a father of a 13-year-old autistic boy. We had to fight for services for our son from the day he was born: to get diagnosed, to get Applied Behavioural Analysis therapy (before it was mandatory), to get teacher’s aides in the classroom, to keep him in school, and to get hospital treatment when his compulsion to bite and pinch got to the point where he was covered in wounds and bruises.

I am afraid my wife and I do not have much fight left in us these days. Our son has lived under constant supervision 24 hours a day for the last year. Two workers stay in our home with him during the day (two are needed to restrain him during his rages). While we commend them for all they have done, the workers are merely a Band-Aid solution.

Our only option at this point is to send our son out of country to the U.S. for treatment that he desperately needs.

Services at the two facilities, in Maine or Boston, will cost the government $200,000 to $300,000 a year. Right now my son is costing the government $15,000 to $20,000 a month because of the government’s lack of direction when it comes to older autistic children.

My question to you, Mr. Graham, is that it may have been cost effective at one time to send these children away (out of sight, out of mind). But now with it being 1 in 150 children being diagnosed within the autism spectrum disorder, maybe we should re-evaluate the direction our province is going in.

I realize that there may be no other recourse for my son but to be sent to these facilities in the U.S. for treatment.

I hope in the future we may be able to prevent our children from having to leave Canada to get the services they so desperately need.

Stephen Robbins

Woodstock, N.B.

May 25, 2007 Posted by | adult autism, autism disorder, autism residential care, Autism Society New Brunswick, autism treatment, Spurwink | 3 Comments

Hope For Autism

Hope for autism

Thursday, 24 May, 2007

Health Children with autism showed an improvement in language and daily living skills and also in their levels of Intelligence Quotient (IQ) following the implementation of Early Intensive Behavioural Intervention (EIBI).

The home-based programme was tried for 25 hours per week over a two-year period, with the cooperation of trained staff and the parents of autistic children. The courses were individualised to meet the needs of each child and this proved to be beneficial. IQ levels improved significantly, with two-thirds of the children showing an increase. Indeed, one child saw their IQ leap from 30 to 70, while another showed an improvement from 72 to 115. This is particularly impressive considering the general population have an average IQ of between 85 and 115.

Despite the intensive nature of the programme, parents were more than willing to participate to help their children. The study was led by Professor Bob Remington of the School of Psychology, who did admit that the programme was hard work and a big commitment but added that he felt it was “harder to be helpless.”

Today, an estimated 535,000 people live in the UK with an autistic condition. This early intervention appears to help autistic children develop important skills that could allow them to be included in mainstream schools. With this in mind, the Southampton Childhood Autism programme (SCAmP) research team will continue to monitor the children to establish long-term effects to improve the programme for others.

http://www.wessexscene.co.uk/article.php?sid=2262

May 24, 2007 Posted by | Uncategorized | Leave a comment

Autism Plea – Keep Our Autistic Children Home in New Brunswick



Daily Gleaner (Fredericton NB)

Published Wednesday May 23rd, 2007
Appeared on page C7


Keep autistic children in the province

This is a letter to Premier Shawn Graham.

I am a father of a 13-year-old autistic boy. We had to fight for services for our son from the day he was born: to get diagnosed, to get Applied Behavioural Analysis therapy (before it was mandatory), to get teacher’s aides in the classroom, to keep him in school, and to get hospital treatment when his compulsion to bite and pinch got to the point where he was covered in wounds and bruises.

I am afraid my wife and I do not have much fight left in us these days. Our son has lived under constant supervision 24 hours a day for the last year. Two workers stay in our home with him during the day (two are needed to restrain him during his rages). While we commend them for all they have done, the workers are merely a Band-Aid solution.

Our only option at this point is to send our son out of country to the U.S. for treatment that he desperately needs.

Services at the two facilities, in Maine or Boston, will cost the government $200,000 to $300,000 a year. Right now my son is costing the government $15,000 to $20,000 a month because of the government’s lack of direction when it comes to older autistic children.

My question to you, Mr. Graham, is that it may have been cost effective at one time to send these children away (out of sight, out of mind). But now with it being 1 in 150 children being diagnosed within the autism spectrum disorder, maybe we should re-evaluate the direction our province is going in.

I realize that there may be no other recourse for my son but to be sent to these facilities in the U.S. for treatment.

I hope in the future we may be able to prevent our children from having to leave Canada to get the services they so desperately need.

Stephen Robbins

Woodstock, N.B.

May 23, 2007 Posted by | autism disorder, autism treatment, New Brunswick | Leave a comment

FEAT-BC Goes Coastal, Salutes Autism Champions at Halifax Sat May 26, 2 to 5


FEAT-BC has been a leader in the autism struggle in Canada and now they are coming east to Halifax this Saturday May 26 from 2 to 5 at the Holiday Inn to salute four federal autism champions Andy Scott, Peter Stoffer, Shawn Murphy and Jim Munson, and to meet with Maritimers to discuss development of a national autism federal election strategy. Interested in autism? Then come on out!

“FEAT BC goes coastal” tour to Halifax

Vancouver, B.C. – Jean Lewis, founding director of FEAT-BC (Families for Early Autism Treatment of BC) today announced that she and other representatives of FEAT-BC will be travelling to Halifax on Saturday, May 26th for a gathering of parents of autistic children and their supporters from across the Maritimes.

“One purpose of this event is to recognize the leadership of MPs Shawn Murphy, Andy Scott, and Peter Stoffer, as well as that of Senator Jim Munson, in the fight to get Medicare coverage for autism now,” said Lewis. “These men have distinguished themselves among Canadian parliamentarians with their dedication to curtailing this emerging health care crisis. Parents of autistic children and supporters look forward to thanking them personally.”

The principal purpose of the gathering is to organize a team of FEAT activists for deployment during the upcoming federal election in select constituencies across the Maritimes.

On the way to Halifax, stops are planned in Ottawa and Toronto for meetings with Ontario-based parent activists.

At 11:00 a.m. on Thursday, May 24th, a news conference will be held in the Charles Lynch Press Room on Parliament Hill.

FEAT-BC (Families for Early Autism Treatment of BC) is a not-for-profit volunteer organization of parents and professionals working towards universal access to effective, science-based treatment for all Canadians diagnosed with autism in Canada.

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For further information, contact: Jean Lewis at jean.lewis@telus.net, or telephone 604-925-4401 or 604-290-5737.

May 23, 2007 Posted by | Andy Scott, autism, FEAT, Jim Munson, national autism strategy, Peter Stoffer, Shawn Murphy | Leave a comment

No Autism Just Fredericton In May






It was a beautiful May day in Fredericton. A perfect day to do a bridge walk, from Westorland Street Bridge, along the Saint John River, across the pedestrian bridge, (former train bridge) through the down town, across the Westmorland Street Bridge and home to Nashwaaksis on the North side of Fredericton. But who let that Blogger into the picture?

May 22, 2007 Posted by | autism, blogger, Fredericton, Nashwaaksis, Saint John River | 2 Comments

Autism & ABA, For Conor It All Adds Up




I have commented previously about how ABA, Applied Behavior Analysis, has been such a positive and effective means of communicating with Conor, teaching him to communicate, teaching him to read, and controlling and reducing problem behavior, notwithstanding the challenges that remain. By problem behavior I mean self aggression and self injurious behavior as well as property damage and aggression to others. Another area of skill development for Conor has been math. Conor loves his numbers and he is learning and loves to demonstrate his math skills as shown in these pictures. The pictures on this comment show skills, including patience and task accomplishment, in addition to adding things up correctly, that would have been unimaginable prior to ABA. If parents with newly diagnosed children do not wish to believe the hundreds of studies documenting the effectiveness of ABA as an intervention for autistic children then take a look at these pictures. This is not a “robotic” child being forced to perform by an abusive methodology. This is my son relaxing on the holiday and enjoying a past time. If you think he has been been deprived of his personality because of exposure to ABA look at the pictures of my laughing joyous son on this blog site. He has an infectious personality and he has been loved by many therapists who have worked with him and other people who meet him in our daily lives.

Do not listen to the ideologues who oppose ABA and minimize the wealth of professional literature supporting its effectiveness. And do not listen to them when they say ABA deprives children of their personalities. There is no professional literature to support these allegations and the experiences of too many autistic children and their families say otherwise. Michelle Dawson, Laurent Mottron, Jim Sinclair and other anti-ABA ideologues do not speak for my son. He speaks for himself. And when it comes to ABA Conor can add it all up for himself as he does in these pictures. In his actions, in his exercise of skills he has learned, in his joyful demeanor, Conor speaks for himself and he puts the boot to these tired anti-ABA careerists.

May 21, 2007 Posted by | Applied Behavior Analysis, autism disorder, autism interventions, Conor Doherty, Jim Sinclair, Laurnet Mottron, Michelle Dawson, neurodiversity | 2 Comments